Feeling hot, hot, hot

Thursday, July 26, 2012

I thought I would miss the room service, the Wednesday Treat Train, the Thursday Subway sandwiches, the Friday pizza party, and the Sundaes on Saturday.  But I don't.  Aside from all of the free food, I was sure I would miss the daily rounds, the doctors and nurses, the activities, the kids, and the famous people visiting (Gavin Degraw was there yesterday.)  Do I?  Nope, not in the least.  But now that we've been home for a few days, I realize there's really only one thing I truly miss about our home away from home... the always blasting air conditioning.   

The air was so cold in our room at the hospital that I had to wear a sweatshirt every day.  I slept under 2 blankets at night.  I even sipped hot cocoa in the evening to keep from shivering.  And I loved it!    Thankfully, we have central air at home and we keep our house pretty cool.  But now that we have control over our thermostat, and since we now pay the electric bill, the temp is set around 68 degrees.  This keeps Matt and Ari very comfortable.  But I sweat.  All day.  And all night.  I wake up shvitzing in the morning and am sticky in the evening.  Hot coffee in the morning?  Yeah right.  You try being 8 months pregnant in July.

There's really only one thing to do to escape this summer heat and humidity and get my hormonal (and huge) body back to a cool setting. 

Go back.

Week update:

We are doing very well.  Ari had his first outpatient appointment at the Dana Farber yesterday and had his port placed today (temporary picc line out, permanent line surgically implanted under his skin where it will remain for 2 years).  He is spending a lot of time playing outside at the park and we are visiting the fire station multiple times daily.  His sleep patterns are still a bit screwy but improving.  He's eating and drinking and running and climbing and laughing and having a great time.

But just as we're getting used to things at home, we made the decision to start the next phase of treatment back in the hospital.  One of the new drugs has some funky side effects and though we were given the option to remain out-patient, we chose the safety and security of the doctors and nurses watching Ari 24/7.  We will go back Wednesday and should be out by Sunday or Monday.  5 days - piece of cake!

Mmm cake...


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